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Ethical Issues in Governing Biobanks
Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the...
The Right to Science
The first serious, extended effort to use a human rights-based approach to address the scientific issues affecting society and the often-neglected human right to science.
The Oxford Handbook of Reproductive Ethics
Intimate and medicalized, natural and technological, reproduction poses some of the most challenging ethical dilemmas of our time. This volume brings together scholars from multiple perspectives to address both traditional and novel questions about the rights and responsibilities of human reproducers, their caregivers, and the societies in which they live.
Promoting the “Human” in Law, Policy, and Medicine
Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong intellectual legacy, notably through her work on the human right to science, genomic and health-related data sharing, genome editing, human reproductive technologies, stem cell research, the rights of children, and population health. This collection of essays honours her extraordinary academic contributions to law, policy, and medicine.
Governing Medical Knowledge Commons
This book collects fifteen new case studies documenting successful knowledge and information sharing commons institutions for medical and health sciences innovation. Also available as Open Access.
Pandemics and Peace
Presented are case studies of recent pandemic threats in our globalized world and how interests, institutions, and ideas can align to allow for interstate cooperations even in unfavorable environments. The author has a working proposition on what makes new forms of public-private governance effective and he creates analytical frameworks for practitioners grappling with transnational problems. Engaged here are core debates in the international relations theories of cooperation.
Property Rights and Neoliberalism
Property rights and efforts to curb state appropriation of private properties for public purposes have always held high status on the political agenda of the US and many other nations that feature a corporate capitalist economic system. In addition to this, over the last several decades conservative libertarian and neo-liberal groups have put constitutional demands for greater property protection on the agendas of courts in several countries. Studying property rights mobilization in both domestic and comparative contexts, the contributors to this volume bring a range of social science perspectives to address three primary issues: the contours and characteristics of property rights mobilizations; the degree to which property rights movements have influenced development of law in demonstrable ways; and the broader cultural, social and economic implications of modern-era property rights litigation and legal mobilizations. This will be a key text for anyone working within or interested in property rights.
Proceedings of the EU preparatory meeting of the Third world congress for freedom of scientific research – “From the body to the body politic” (2013)
For nearly ten years now Luca Coscioni Association through and together with the World Congress has been fighting for freedom of scientific research. The World Congress is not a place of mere convention and intellectual debate: it is also the seat of political initiative where scientists, researchers, politicians, sick and disabled people and citizens can work together to address complex issues such as patentability, Open Access and clinical trials, as well as the relationship between science and religion or between science and politics. Marco Pannella, leader of the Nonviolent Radical Party, is to thank for providing the idea for this scheme. It was put together in the weeks when we were be...
Indigenous Peoples' Cultural Property Claims
This book analyses the legal aspects of international claims by indigenous peoples for the repatriation of their cultural property, and explores what legal norms and normative orders would be appropriate for resolving these claims. To establish context, the book first provides insights into the exceptional legislative responses to the cultural property claims of Native American tribes in the United States and looks at the possible relevance of this national law on the international level. It then shifts to the multinational setting by using the method of legal pluralism and takes into consideration international human rights law, international cultural heritage law, the applicable national laws in the United Kingdom, France and Switzerland, transnational law such as museum codes, and decision-making in extra-legal procedures. In the process, the book reveals the limits of the law in dealing with the growing imperative of human rights in the field, and concludes with three basic insights that are of key relevance for improving the law and decision-making with regard to indigenous peoples’ cultural property.
Guns in American Society [3 volumes]
Thoroughly updated and greatly expanded from its original edition, this three-volume set is the go-to comprehensive resource on the legal, social, psychological, political, and public health aspects of guns in American life. The landmark 2002 edition of Guns in American Society: An Encyclopedia of History, Politics, Culture, and the Law was acclaimed for helping readers get beyond the sometimes overheated rhetoric and navigate the overwhelming amount of unbiased academic research on gun-related issues. Now, in light of the steady rate of gun violence and several high-profile shooting incidents, this extraordinary three-volume work returns in a timely and thoroughly updated edition. With over...
