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Principles and Practice in Biobank Governance
Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Genomics and Society
Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011. The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system. Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine. - Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011 - Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system - Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more
The Oxford Handbook of the Sociology of Body and Embodiment
In popular debates over the influences of nature versus culture on human lives, bodies are often assigned to the category of "nature": biological, essential, and pre-social. The Oxford Handbook of the Sociology of Body and Embodiment challenges that view, arguing that bodies both shape and get shaped by human societies. As such, the body is an appropriate and necessary area of study for sociologists. The Handbook works to clarify the scope of this topic and display the innovations of research within the field. The volume is divided into three main parts: Bodies and Methodology; Marginalized Bodies; and Embodied Sociology. Sociologists contributing to the first two parts focus on the body and...
Personalized Medicine
"Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society"--Provided by publisher.
The Ethics of Generating Posthumans
Should transhuman and posthuman persons ever be brought into existence? And if so, could they be generated in a good and loving way? This study explores how society may respond to the actual generation of new kinds of persons from ethical, philosophical, and theological perspectives. Contributors to this volume address a number of essential questions, including the ethical ramifications of generating new life, the relationships that generators may have with their creations, and how these creations may consider their generation. This collection's interdisciplinary approach traverses the philosophical writings of Aristotle, Aquinas, Kant, Nietzsche, and Heidegger, alongside theological considerations from Jewish, Christian, and Islamic traditions. It invites academics, faith leaders, policy makers, and stakeholders to think through the ethical gamut of generating posthuman and transhuman persons.
Histories of Technology, the Environment and Modern Britain
Histories of Technology, the Environment and Modern Britain brings together historians with a wide range of interests to take a uniquely wide-lens view of how technology and the environment have been intimately and irreversibly entangled in Britain over the last 300 years. It combines, for the first time, two perspectives with much to say about Britain since the industrial revolution: the history of technology and environmental history. Technologies are modified environments, just as nature is to varying extents engineered. Furthermore, technologies and our living and non-living environment are both predominant material forms of organisation – and self-organisation – that surround and make us. Both have changed over time, in intersecting ways. Technologies discussed in the collection include bulldozers, submarine cables, automobiles, flood barriers, medical devices, museum displays and biotechnologies. Environments investigated include bogs, cities, farms, places of natural beauty and pollution, land and sea. The book explores this diversity but also offers an integrated framework for understanding these intersections.
Economics of the Pharmaceutical and Medical Device Industry
This book provides a comprehensive examination of the pharmaceutical and medical device industry, including analysis of its current trade and innovation strategies. Opening with a survey of the global pharmaceutical and medical device industry, Bhardwaj outlines the growing trade and trade interdependence among countries in the global supply chain. He adopts a trade competitiveness approach to analyze patterns of product specialization and examines the drug discovery process and its challenges in translating bioscientific knowledge into lifesaving products. Bhardwaj argues that further economic integration, collaborative R&D, and digital technologies may help accelerate productivity and addr...
Law and Legacy in Medical Jurisprudence
Introduction and investigation of the concept - and utility - of legacy in the field of medical jurisprudence.
Modified: Living as a Cyborg
Building off the highly successful The Cyborg Handbook, this new collection of essays, interviews, and creative pieces brings together a set of compelling personal accounts about what it means to live as a cyborg in the twenty-first century. Human integration with complex technologies goes back to clothes, cooking, and language, but has accelerated incredibly in the last few centuries, with interest spreading among scientists, coders, people with sophisticated implants, theorists, and artists. This collection includes some of the most articulate of these voices from over 25 countries, including Donna Haraway, Stelarc, Natasha Vita-More, Steve Mann, Amber Case, Michael Chorost, Moon Ribas, Ke...
