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Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with di...
Chatelle draws wise guidance from the mouths of children and provides straightforward answers to meet the challenge of finding comforting and helpful words to share with others.
This vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses is an “essential read for . . . those wondering how to be a better support system” (Library Journal). Michele Lent Hirsch knew she couldn’t be the only woman who has dealt with serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population—and now, with long COVID emerging, one that continues to grow. Though young women with serious illness tend to be seen as outliers, young female patients are in fact the prim...
Thirty years ago, Susan Sontag wrote, "Everyone who is born holds dual citizenship in the kingdom of the well and the kingdom of the sick ... Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place." Now more than 133 million Americans live with chronic illness, accounting for nearly three-quarters of all health care dollars, and untold pain and disability. There has been an alarming rise in illnesses that defy diagnosis through clinical tests or have no known cure. Millions of people, especially women, with illnesses such as irritable bowel syndrome, chronic pain, and chronic fatigue syndrome face skepticism from physicians and the ...
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic...
Through firsthand research and personal relationships, Suzanne Woods Fisher has collected more than 400 proverbs that uncover the rich heritage, folklore, faith, values, history, and essence of the Plain People. These proverbs serve as teaching tools and maxims for practical living--but they're not just for the Amish. They're for anyone who seeks God's wisdom and truth for everyday circumstances. Ranging from the simple to the profound, from the serious to the humorous, these sayings will stick with you through life's joys and sorrows. This expanded edition of Amish Proverbs includes more than 200 additional proverbs, giving readers more of the wit and wisdom they crave.
This guide provides inspiration, advice on emotional coping, and support on living your best life with chronic illness from someone who's been there. The emphasis in this book is on LIVING your life, not just enduring it.
Drawing on input from people with long-term ailments, this book points the way to achieving the best possible life under the circumstances.
One of the most common yet underrecognized autoimmune and rheumatological disorders. Sjögren's (pronounced SHOW-grens) syndrome, or SjS, affects more people than rheumatoid arthritis and lupus combined. Difficult to diagnose, SjS is characterized by symptoms that shift almost daily, usually beginning with vague discomforts such as dry eyes and dry mouth, then advancing to more severe concerns such as joint pain and swollen glands. A Body Out of Balance provides a comprehensive guide to the wide array of symptoms, traditional and complementary treatments, and invaluable coping methods, so patients may devise a personal treatment plan. Co written by a woman living with the disease and by a physician who has treated countless SjS patients, this indispensable resource will enhance awareness and demystify this often-misunderstood disorder.