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Palliative Care for Infants, Children, and Adolescents
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as complete...
Pediatrics
A new edition of a classic textbook in pediatrics—for course use or self-study. The third edition of this classic textbook has been fully revised and updated by thirty-nine contributing authors. Essential information about the medical care of infants, children, and adolescents is presented in a highly readable self-instructional format for medical students. The text may also be used in training programs for nurse practitioners and physician assistants. The thirty chapters present dynamic scenarios illustrating a variety of medical situations involving children and then take the reader through decision-making processes for diagnosis and treatment. Features: Full coverage from birth through adolescence Charts, tables, and illustrations detailing diagnostic tools, emergency procedures, differential diagnoses, and clinical findings and their proper interpretation Concise self-instruction based on specific topics and objectives Self-test (with answers) for each chapter
Oxford Textbook of Palliative Nursing
The Oxford Textbook of Palliative Nursing is the definitive text on nursing care of the seriously ill and dying. It is a comprehensive work addressing all aspects of palliative care including physical, psychological, social and spiritual needs. The text is written by leaders in the field and includes an impressive section on international palliative care. Each chapter includes case examples and a strong evidence base to support the highest quality of care. The book is rich with tables and figures offering practical resources for clinical practice across all settings of care and encompassing all ages from pediatrics to geriatrics.
Describing Death in America
National expenditures for medical care in the months and days preceding death are enormous. But we do not know whether that money is buying good quality care or optimizing the quality of life of those dying, or whether the situation is getting better or worse over time. The information that exists "describing death" at a national level â€" though some of it is very informative â€" is fragmentary. This report recommends ways to fill the information gaps by better use of existing nationally-representative data, and through some new measures, in particular, a new, ongoing National Mortality Followback Survey. The aim is to allow us to benchmark where we are today as a society, and what goals we can set to minimize pain and suffering and maximize the quality of life of all of us who will die in the years to come.
Befriending the North Wind
The death of a child horrifies. We recoil at its mention. Images of dead or dying children impose themselves on our attention in ways that challenge us to change. Yet the topic of dying children is studiously avoided. When we do take notice, we paint children as victims, innocent of both blame and agency, passive in the face of suffering. Children die secluded in homes and hospitals, allowing society to carry on as though it were not happening. Befriending the North Wind is about the moral lives of children and their agency in decisions about death. Our failure to be honest and open about the death of children hinders us from addressing their needs and confronting the sources of their suffer...
When Children Die
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
Baby at Risk
A riveting and disturbing investigation of how high-tech pregnancies and medical interventions affect the lives of babies born at-risk, their families, and society at large
Hospice Ethics
Hospice care is one of the fastest-growing segments of the U. S. healthcare system, a trend that is expected to accelerate as the median age of the population continues to rise over the next three decades. Despite over forty percent of the population now dying while on hospice care, very little has been published on the ethical opportunities and challenges experienced in the everyday lives of those giving and receiving hospice care. This book is the first comprehensive collection devoted to analyzing distinctive ethical issues arising in the delivery of hospice care and designed to promote best ethical practices for hospice care professionals and organizations. Thirteen newly commissioned ch...
Transforming the Culture of Dying
Transforming the Culture of Dying assesses the establishment of the Project on Death in America and evaluates its the contributions to the development of the palliative care field and end of life care in American society.
Clinical Ethics in Pediatrics
This volume provides a practical overview of the ethical issues arising in pediatric practice. The case-based approach grounds the bioethical concepts in real-life situations, covering a broad range of important and controversial topics, including informed consent, confidentiality, truthfulness and fidelity, ethical issues relating to perinatology and neonatology, end-of-life issues, new technologies, and problems of justice and public health in pediatrics. A dedicated section also addresses the topics of professionalism, including boundary issues, conflicts of interests and relationships with industry, ethical issues arising during training, and dealing with the impaired or unethical colleague. Each chapter contains a summary of the key issues covered and recommendations for approaching similar situations in other contexts. Clinical Ethics in Pediatrics: A Case-Based Textbook is an essential resource for all physicians who care for children, as well as medical educators, residents and scholars in clinical bioethics.
