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Living With Dementia
Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through...
Diagnosing Folklore
Diagnosing Folklore provides an inclusive forum for an expansive conversation on the sensitive, raw, and powerful processes that shape and imbue meaning in the lives of individuals and communities beleaguered by medical stigmatization, conflicting public perceptions, and contextual constraints. This volume aims to showcase current ideas and debates, as well as promote the larger study of disability, health, and trauma within folkloristics, helping bridge the gaps between the folklore discipline and disability studies. This book consists of three sections, each dedicated to key issues in disability, health, and trauma. It explores the confluence of disability, ethnography, and the stigmatized...
Social Research Methods in Dementia Studies
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two in...
Multilingual Interaction and Dementia
This book brings together international, linguistic research with a focus on interaction in multilingual encounters involving people with dementia in care and healthcare settings. The methodologies used (Conversation Analysis, Ethnography and Discursive Constructionism) capture practices on the micro-level, revealing how very subtle details may be of critical importance for the everyday well-being of participants with dementia, particularly in settings and contexts where there is a lack of a common verbal language of interlocutors, or where language abilities have been lost as a result of dementia. Chapters analyse the practices and actions employed by interlocutors to facilitate mutual unde...
The Routledge Handbook of Public Service Interpreting
The Routledge Handbook of Public Service Interpreting provides a comprehensive overview of research in public service, or community interpreting. It offers reflections and suggestions for improving public service communication in plurilingual settings and provides tools for dealing with public service communication in a global society. Written by leading and emerging scholars from across the world, this volume provides an editorial introduction setting the work of public service interpreting (PSI) in context and further reading suggestions. Divided into three parts, the first is dedicated to the main theoretical issues and debates which have shaped research on public service interpreting; th...
Creative Dialogues
This volume is the outcome of work done in the groundbreaking field of Narrative Medicine by an interdisciplinary research team based at the University of Lisbon Centre for English Studies (ULICES) and devoted to the international project Narrative and Medicine since 2009. The articles and essays gathered here, heterogeneous as they may be (such is the natural outcome of research carried out across disciplines), are not only of high caliber when read individually, but also constitute an inval ...
Entangled Narratives
As people are living longer on average than ever before, the number of those with dementia will increase. Because many will live a considerable time at home with their diagnosis, we need to know more about the ways people can adapt to and learn to live with dementia in their everyday lives. Lars-Christer Hyd n argues in this book that to do so will involve re-imagining what dementia really is and what it can mean to the afflicted and their loved ones. One of the most important everyday opportunities for sharing experiences is the simple act of storytelling. But when someone close to you gradually loses the ability to tell stories and cherish the shared history you have together, this is seen...
The Wounded Storyteller
Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard,...
Health, Illness and Culture
This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.
Talking with Dementia Reconsidered
“The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care profess...
