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Genome Finland
Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish diseases in the 1960s and 1970s to the implementation of personalized medicine in the 2020s. The main focus is on the 21st century – the period after the Human Genome Project – and on the establishment of new infrastructures to support genomic medicine, such as biobanks. The book opens up the reasoning and discussions as well as the settings and events through which Finnish medical genetics reached the top level of international biomedicine in the late 1990s, biobanks and biobank research evolved during the 2000s and 2010s, and large transnational public-private partnership projects utilising massive amounts of genome and patient data started to dominate also Finnish research into the 2020s. In particular, Genome Finland examines and exposes the connections between biomedical science, ‘knowledge-based’ economy and business, and innovation policy in Finland during the past decades.
Populations as Brands
In Populations as Brands Aaro Tupasela extends the fields of critical data studies and nation branding into the realm of state controlled biobanking and healthcare data. Using examples from two Nordic countries - Denmark and Finland – he explores how these countries have begun to market and brand their resources using methods and practices drawn from the commercial sector. Tupasela identifies changes during the past ten years that suggest that state collected and maintained resources have become the object of valuation practices. Tupasela argues that this phenomenon constitutes a novel form of nation branding in which relations between the states, individuals and the private sector are re-...
History of Universities
Volume XVII of History of Universities contains the customary mix of learned articles, book reviews, conference reports, and bibliographical information, which makes this publication such an indispensable tool for the historian of higher education. Its contributions range widely geographically, chronologically, and in subject-matter. The volume is, as always, a lively combination of original research and invaluable reference material.
Population Genetics and Belonging
This book explores how human population genetics has emerged as a means of imagining and enacting belonging in contemporary society. Venla Oikkonen approaches population genetics as an evolving set of technological, material, narrative and affective practices, arguing that these practices are engaged in multiple forms of belonging that are often mutually contradictory. Considering scientific, popular and fictional texts, with several carefully selected case studies spanning three decades, the author traces shifts in the affective, material and gendered preconditions of population genetic visions of belonging. Topics encompass the debate about Mitochondrial Eve, ancient human DNA, temporality and nostalgia, commercial genetic ancestry tests, and tensions between continental and national genetic inheritance. The book will be of particular interest to scholars and students of science and technology studies, cultural studies, sociology, and gender studies.
Entanglements of Rare Diseases in the Baltic Sea Region
Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.
Economic Sociology in Europe
This volume examines the interplay of society and economy against the backdrop of recent crises as well as technological, political and social change in Europe. Covering a range of case studies from different European countries and regions, the contributions analyse the effects of recent challenges such as the Corona Pandemic, the rise of economic nationalism, the functioning of illegal markets, as well as changes in markets and other economic institutions. The book presents the current state of European economic sociological perspectives as well as an overview of the latest theoretical and methodological advancements in the field. It will appeal to students and scholars of economic sociology, economics, political science, political economy, and comparative capitalism research.
Data Paradoxes
Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing. In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar ...
Craft in Biomedical Research
This book explores the new ways in which biology is becoming technology. The revolutionary iPS cell technology has made it possible to turn human skin and blood cells into pluripotent stem cells, thus providing an unprecedented opportunity to study the pathophysiology of diseases, understand human developmental biology, and generate new therapies. Drawing from a rich ethnographic study, Meskus traces the making of the iPS cell technology through the perspectives of clinical translation, laboratory experimentation, and tissue donation by voluntary patients. Discussing non-human agency, the embodied and affective basis of knowledge production, and the material politics of science, the book develops the idea of an instrumentality-care continuum as a fundamental dynamic of biomedical craft. This continuum, Meskus argues, opens up a novel perspective to the commercialization and industrial-scale appropriation of human biology, and thereby to the future of ethical biomedical research.
Historical Explorations of Modern Epidemiology
This volume explores the history of epidemiology from the mid-twentieth century to the present. Epidemiology has exerted major influence on the way that both infectious and chronic diseases are conceptualized and controlled, and, more generally, on the way that people in modern societies think about health, behavior, longevity, and risk. This collection consists of a series of in-depth analyses of the roots, development, and impact of epidemiological research, illuminating the complex relationship between medical research and data on the one hand, and social and cultural factors on the other. The thematical and geographical scope of the book ranges from indigenous and participant perspectives to the visualization of pandemics, and from Circumpolar North to East Africa. The book identifies significant historical changes and the driving forces behind them, charting forms of science-society interaction that characterize modern epidemiology. Chapter 1 and chapter 4 are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
The Rowman & Littlefield Handbook of Bioethics
This bioethics handbook offers concise, up-to-date, and easy to read chapters on a broad range of bioethical topics in the following categories: foundational concepts, theory and method, healthcare ethics, research ethics, public health, technology, and the environment. The volume provides a snapshot of current bioethics, taking into account current affairs and emerging new topics. Each chapter acknowledges and critically breaks down the historical developments of the subject and the most authoritative existing literature on respective topics, providing accessible and up-to-date philosophical analysis. As such, the chapters are designed to be attractive as primary or supplementary teaching material for university classes of the philosophical or bioethical variety, with clear demarcations and indicators for key terms, ideas, and arguments that should also facilitate productive note-taking and points for critical discussion for students. The handbook also serves as a one-stop starting resource for multi- and interdisciplinary researchers and practitioners who engage with bioethics in their work.
