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Personalized Medicine
Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium? Personalized Medicine investigates the recent movement for patients’ involv...
Solidarity in Biomedicine and Beyond
In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.
The Pandemic Within
This book offers a blend of moral imagination and social-political analysis to overcome the defects COVID-19 has exposed in our political-economic order. It shows how hegemony and complexity prevent societies from envisioning better practices and institutions and presents feasible solutions.
Genetic Suspects
As DNA forensic profiling and databasing become established as key technologies in the toolbox of the forensic sciences, their expanding use raises important issues that promise to touch everyone's lives. In an authoritative global investigation of a diverse range of countries, including those at the forefront of these technologies' development and use, this book identifies and provides critical reflection upon the many issues of privacy; distributive justice; DNA information system ownership; biosurveillance; function creep; the reliability of collection, storage and analysis of DNA profiles; the possibility of transferring medical DNA information to forensics databases; and democratic involvement and transparency in governance, an emergent key theme. This book is timely and significant in providing the essential background and discussion of the ethical, legal and societal dimensions for academics, practitioners, public interest and criminal justice organisations, and students of the life sciences, law, politics, and sociology.
Genetic Data and the Law
Mark Taylor demonstrates how research using genetic data can be reconciled with proper privacy protection.
Investigating Interdisciplinary Collaboration
Interdisciplinarity has become a buzzword in academia, as research universities funnel their financial resources toward collaborations between faculty in different disciplines. In theory, interdisciplinary collaboration breaks down artificial divisions between different departments, allowing more innovative and sophisticated research to flourish. But does it actually work this way in practice? Investigating Interdisciplinary Collaboration puts the common beliefs about such research to the test, using empirical data gathered by scholars from the United States, Canada, and Great Britain. The book’s contributors critically interrogate the assumptions underlying the fervor for interdisciplinarity. Their attentive scholarship reveals how, for all its potential benefits, interdisciplinary collaboration is neither immune to academia’s status hierarchies, nor a simple antidote to the alleged shortcomings of disciplinary study. Chapter 10 is available Open Access here (https://www.ncbi.nlm.nih.gov/books/NBK395883)
The Cambridge Handbook of Health Research Regulation
The definitive reference guide to designing scientifically sound and ethically robust medical research, considering legal, ethical and practical issues.
Genetics as Social Practice
Recent debate about the ethical and regulatory dimensions of developments in genetics has sidelined societal and cultural aspects, which arguably are indispensable for a nuanced understanding of the complexities of the topic. Regulatory and ethical debates benefit from taking seriously this ‘third dimension’ of culture, which often determines the configurations and limits of the space within which scientific, ethical and legal debate can take place. To fill this gap, this volume brings together contributions exploring the mutual relationships between genetics, markets, societies and identities in genetics and genomics. It draws upon the recent transdisciplinary debate on how socio-cultural factors influence understandings of ‘genetics2.0' and shows how individual and collective identities are challenged or reinforced by cultural meanings and practices of genetics. This book will become a standard reference for everyone seeking to make sense of the controversies and shifts in the field of genetics in the second decade of the twenty-first century.
Shifting Solidarities
Shifting Solidarities offers a comprehensive analysis of solidarity at a time when major social transformations have penetrated the heart of European societies, disrupting markets and labour relations, transforming social practices, and affecting the moral infrastructure of European welfare states. Factors such as the economic crisis, migration, digitalisation, and climate change all contribute to a sense of emergency. This volume considers how, in times of crisis, there are calls for solidarity by various new social and political actors and movements. The contributions present a broad array of empirical work and critical scholarship, zooming in on shifting solidarities in various domains of social life, including work, social policy, health care, religion, family, gender and migration. This compelling volume provides a unique resource for understanding solidarity in contemporary Europe, and will be a vital text for students and scholars across sociology, social policy, cultural studies, employment/labour markets and organisation studies, migration studies and European studies.
